Prayers for a couple of kids please.

The procedure did not go as planned. Dr. W did his best to try and get it done. Because of his neck fusion, there was not enough space for the size of the stint to make it down. Tyler is doing okay. His vitals are stable and he is watching batman. We told him that he did a great job and that he did everything he was suppose to do. We are back at Egleston. While we weren't prepared for this outcome, we managed to meet with Tyler's physician here and discussed moving forward. We are pleased with the current plans and are encouraged about the approach. Focus will be on Tyler's nutrition and comfort. While we don't know what the future holds, pray for miracles for Tyler. We know things can suddenly go wrong so we also think things can suddenly go right. Please say prayers for Tyler. Todd and I are going to try and be still in the boat during this storm. It's hard to do but a good goal.
Jeremiah 29:11-12 "For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call on me and come pray to me, and I will listen to you."
Thank you for all of your help! Love you guys so much.
Martha

Todd: Tyler has had another great day! He was originally scheduled for the procedure tomorrow to place the G tube (feeding tube) and to also place the stint. *Answered prayer alert* Tyler does not need the stint!!! They will not be placing the stint in. The area they've been draining from, his abdomen/liver is almost all the way healed. He no longer needs the stint! He will have the G tube placed on Monday and that should be all he needs to go to rehab! I'm waiting for confirmation on that but I think everything else has fallen into place. They sat him up in his bed today and let his feet dangle off the edge of the bed. They did this yesterday too and he looked much more comfortable doing it today. He is such a strong boy. Tomorrow they're going to get him in his wheelchair and since it's back adjustable, let him sit at a few different levels. He's an All Star and will do great! They also took the EVD drain out today. This is the drain that was in his head draining the spinal fluid from his swollen neck. This was from the last time they put him in his wheel chair at Scottish Rite, so specific prayers that he will tolerate that well tomorrow and each day afterwards. He is looking so good. He's still getting formula feeds and that is going great. We can already see what a difference it has made and they're increasing the feed amount each day as he tolerates. He is gaining some weight, it's not a lot but a definite difference. Now that they've gotten the EVD out were going to wash his illustrious hair! He's such a champ. Thank you so much for the prayers, love and support. You guys sure know how to lay em down! Love to all! Will update anything as I learn.

Todd: So sorry for no posts lately. Everything has been a bit hectic and busy, but in a good way. Just getting back to work has taken so much, and I apologize for worrying anyone. But Tyler has been doing great. Still at Eggleston and they're still a little concerned about the bile leak and the drain. However on Friday they repositioned the drain to a different area. Once they did this, there's still very minimal output. He's been getting in his wheelchair and going for strolls and has been handling that very well. He's been holding his head up very well and even when he let his head rest, when he's asked, he will raise his head up on his own and keep it positioned. Yesterday, while in his chair the therapist asked him if he could hold his head up for 30 seconds. She counted to around 80 before he rested. He's such an overachiever in everything he does! Can't wait to take this boy to rehab and then home. There has been no date given for rehab but ask for specific prayers he will be going very soon. I don't see why he shouldn't be moved in the next few days. He's still smiling and happy and he's ready to get to work! I'm really sorry once again for the delayed post, but please know that Tyler is doing great and we love all of you and will keep you all posted always. Thank you for the love, support and prayers. Will update again later today!

Todd: Tyler is doing awesome! He is all smiles today! He knows where he is and he knows why he's there. Anytime we talked to him about working and getting better you could see in his eyes that he is ready to get going! Within the next 24-48 hours they will do away with the ventilator entirely. Soon also they will start capping the trach so they can get that removed and closed up. It's a process and we respect that process. Its so nice to be back with the doctors and nurses we know so well. Olivia is able to go into his room now so she got to see him today for the first time since Christmas. She laid on the bed next to him and they were both so happy! Some of the nurses that took care of him from PICU were going to go visit with him after their shift was over. Tyler's nurse today was one that took care of Olivia several times and she was so happy to see Olivia. The same primary doctor that cared for Olivia is also Tyler's primary doctor. He has a very busy day tomorrow and we look forward to his progress. He will be going to the gym and has physical therapy, occupational therapy and speech therapy twice daily. He was moving his thumb and his hands. Also continued to move his legs and arms. He still hasn't said anything, but he mouthed words like bye and you could tell he was trying hard. One day he's just going to start talking and not stop. I know he has so much to say! And were all ears. He was moving his head back and forth just like he was shaking his head no. It was awesome! He has gained about 10 lbs in about 2 weeks and is looking great! He's going to be going down for a spinal X-ray, just because there hasn't been one done in a while. Were confident everything will be just fine. Please say extra prayers for Tripp Halstead Updates tonight as they were at Scottish Rite today as well, but have since returned home. As always, thank you for the love, prayers and support. We love you all!

Tyler is working hard in rehab! After his sessions he is exhausted and sleeps a lot. He is so much happier at Scottish Rite. It is a positive environment and he is getting so much attention and support from all the doctors, therapists, nurses and techs.

His shoulders and upper body are the strongest at this time so they are playing to these strengths. He will get a special wheelchair that he can control by head movement. Soon, they will put him on a special bike to try to get more movement from his arms and legs.

X-rays of his lungs show a big improvement. He is on the ventilator at night for support, but they will try again to get him off the vent this week.

The Drs. expect Tyler to be released to Outpatient Rehab (full day) in about 5-6 weeks. The primary Dr. does not think that Tyler will be walking when he leaves the hospital. In God's Time....(thanks Sue).

Please pray for Tyler, that he is strengthened daily. And pray that his miraculous recovery continues. Pray that his legs get stronger and stronger and that he walks again.

Thanks Rise for sending me such a wonderful scripture gift, Ephesians 3:20. God is able to do far beyond all that we ask or imagine.

Love you all, Ann

Bethlehem Angels Tyler & Olivia Harmon

Todd: I feel like I have to apologize to you all before every time I post since we don’t post as often as we like or as often as we had been in the past. Please everyone know that Tyler is in good hands, and if we have any worries or concerns you all are the first we will let know! We know your all getting anxious at not hearing anything and I am so sorry about that. You all are our number ones . When it comes to letting the family know! You're all family to us and we will let you know immediately. I feel like you're all out in the waiting room, waiting for someone to come out and say something. Sorry to make you all feel this way.

But anyways, Tyler has had a good day today. He did have some pain meds earlier but that could have been in part from his therapies and experiencing discomforts. He is resting well now and has had his shower from the night. I'm sorry if my updates aren’t as detailed and long as they were when I was staying there full time. I am getting updates from his nurses and doctors and well, they're just not the same from when I was there first hand. But the main point is Tyler. He is doing as good as he can be considering the circumstances and we are all so very proud of him! He is looking awesome!! He is showing more movements in his legs so keep those prayers coming!! He's doing much better than I would be if the roles were reversed. We can't wait for him to be back home with us, in his familiar territory with all of his things. His room is full of presents from Christmas and from all of you as well. We want to thank you all from the bottom our of hearts who have loved, prayed, and supported us through all that you do.

One of my good buddies Jay, who is also a Landscaper & His wife Lori have teamed up with our church and also a company that does charity 5K Runs to help families in need. They did set this up on their own and asked if we would share this to those who would be interested locally. Donations can also be made at their site and sponsoring opportunities all over the place.

Please visit- www.fundracers.org/default.aspx?evtkey=_2fd7e20140

for more information We will have Tyler and Olivia there and there will also be fun and games for the young ones to enjoy. Please go to this site and if you have any questions, get in touch with Rob who is correlating this whole thing. It's mind-blowing the support that people give. We truly are blown away from you all. Thank you all for the love support and prayers. Sorry for the shortage of posts and updates. But please know no news is good news. Love to you all!